Our purpose is simple, carry Matthew forward with us on our journey. A journey that will come to the aid and support of families that find themselves on a similar path.
Lovin' Every Day Foundation was created to inspire families with heart conditions by empowering them with the knowledge and resources needed to live an enriched today and brighter tomorrow.
Our team is committed to living our values each and every day. Values that Matthew carried with him during his time here on earth.
Kindness, Integrity, Transparency, Ambition, Accountability, Perseverance, Resiliency
We seek to deliver financial access to AEDs and other related cardiac health needs, CPR and AED training, and the advancement of groundbreaking research and education to our communities and families in need.
Your donation will support us directly in our efforts of providing cardiac related grants, CPR & AED education, and leveraging strategic partnerships to advance groundbreaking research and education surrounding heart health.
Your donation is tax deductible.
We are registered as a Domestic Nonprofit Corporation, 501(c)(3)
You may be able to Double Your Donation through your employer giving programs! Click the "DONATE ONLINE" link below for more details.
We THANK YOU for your support!!
Matthew’s death in September 2017 was sudden and unexpected. Our family learned later, that he likely died from sudden cardiac death associated with Long QT Syndrome, a dangerous and sometimes deadly heart disorder.
Later we would learn that Matthew’s mom, Anne, and brother, Nate, also suffer from the same diagnosis. Our family has felt the full effects of the challenges that come with cardiac health challenges. The fear of both the unknown and known is difficult, but can be overcome by knowledge and empowering families to live a life of purpose.
Matthew's days here were too short, but his impact over 14 years was lasting. He was a loving son, brother, grandson, relative and friend to many. His endearing friendships remain a hallmark of his time here. He will forever be remembered for his caring personality and joyful walk through life, genuine in both intention and purpose. And Oh his smile! Matthew embodied the motto, “lovin’ every day.” So too shall we in his honor.
Sudden Arrhythmia Death Syndromes (SADS) are genetic heart conditions that can cause sudden death in young, apparently healthy, people. These conditions can be treated and deaths can be prevented.
Warning Signs of SADS: family history of unexpected, unexplained sudden death under age 40, fainting or seizure during exercise, excitement or startle, consistent or unusual chest pain and/or shortness of breath during exercise.
Because SADS conditions are passed down from parent to child, each child of an affected parent has a 50% chance of inheriting the condition. It is estimated that over half of the 4,000 SADS deaths each year of children, teens, or young adults have one of the top two warning signs: 1) family history – of a SADS diagnosis or sudden unexplained death (usually undiagnosed and untreated) of a family member, or 2) fainting. SADS conditions occur because the electrical system of the heart is not working properly, so that the heart beats with an abnormal rhythm.
Facts about SADS Conditions:
Each year in the United States, approximately 210,000 Americans die suddenly and unexpectedly due to Sudden Cardiac Arrest. (American Heart Association 2017)
10-12% of Sudden Infant Death Syndrome (SIDS) cases are due to Long QT Syndrome. LQTS is now known to be 3 times more common in the US than childhood leukemia.
1 in 200,000 high school athletes in the US will die suddenly, most without any prior symptoms—JAMA 1996; 276
SADS conditions are:
Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT)
Long QT Syndrome (LQTS)
Short QT Syndrome (SQTS)
Wolff Parkinson White (WPW)
Other SADS related conditions may include malformations of the heart muscle. A dysplasia (misplaced) or cardiomyopathy (thickening) of the heart muscle can be related to Arrhythmogenic Right Ventricular Dysplasia/Cardiomyopathy (ARVD/C), hypertrophic cardiomyopathy (HCM), or Dilated Cardiomyopathy (DM). These conditions can also cause sudden cardiac arrest in the young.
Johns Hopkins ARVD Program;
Cleveland Clinic Information
Hypertrophic Cardiomyopathy Association (HCM);
Children’s Cardiomyopathy Association
Partner with neighboring medical, community and charitable organizations to provide funding for communities and families in need relating to cardiac health.
Partner with neighboring organizations to facilitate CPR and AED training to families, communities, and athletic programs.
Advance the education and research process through strategic partnerships relative to heart health.